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Defining Myself

How do we define ourselves? For most people, it's by their job or hobbies; people define themselves by what they do. I used to be an HRIS...

Activities That Require Energy

Rolling over in bed Getting out of bed Standing Walking Showering Changing clothes Preparing food Chewing Swallowing Digesting Sitting...

Rationing Life

This is what pacing myself is like. I went out of the house for an event yesterday, and now I feel exhausted, sore, and like I'm full of...

M.E. Awareness Month

May is M.E. awareness month. Since you're reading this, you already know a bit about M.E. but there are still a few things you can do. •...

Brief update

We had a bit of an upset over the weekend when 2 of our foster cats got outside. Pippa came home after an hour or so, but Fergus was...

My Current Crash

Today I recognised that yet again, as I'm in a PEM crash I'm still telling myself that I'm OK. I've written about this previously, and...

When Your Spouse Becomes Your Carer

Daniel and I have always had a relationship that felt equal. He doesn't mind the chores and responsibilities that I don't like, and...

Lying to Myself

A person I follow online who has M.E. wrote about documenting her difficult days so she can prove to her future self how bad she actually...

What Is PEM?

PEM stands for Post Exertional Malaise, and is the tell-tale sign of Myalgic Encephalomyelitis. PEM is the crash that people with M.E....

Finally, A Good Experience

I had a good medical appointment yesterday. That seems like it shouldn't be noteworthy, but it is. I saw a physiotherapist for my...

Embarrassed

I'm still dealing with my own internalised ableism. A friend invited me to an event, and while I wasn't feeling well enough to go, I...

More Things That Help Me

Here are some more things that help me as someone with Myalgic Encephalomyelitis. My Webster pack of daily medications is a big help. I...

Mourning My Old Self

I've heard from a lot of people with chronic illnesses that they mourn their old selves, and I do too. Mourning a loss is totally normal....

My Reasons for This Blog

There are a few reasons I started this blog. It's partially a way to let family and friends know how I'm doing. It's also easier for me...

How Long My M.E. Diagnosis Took

A friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....

Is M.E. Contageous?

The short answer is that Myalgic Encephalomyelitis is not contageous. However, it is usually caused by viruses which are contageous....

Fear

Fear is a very real and constant part of my M.E. experience. I fear that I'll never get any better than my current condition, even as I...

M.E. Advocacy, What You Can Do

If I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...

Brain fog

Brain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....

Any Questions?

I can't think of what to write today, so I'd like to ask if you have any questions for me about M.E. or my experience with it. Want to...

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