Kary PearsonMar 3, 20241 min readMy WheelsI missed International Wheelchair Day a few days ago, but I still want to talk about it. There's a common misconception that resorting to...
Kary PearsonDec 31, 20232 min readA ReviewTrent Reznor best described my life - every day is exactly the same. I wake up, make my way to the living room, and at night I go back to...
Kary PearsonDec 17, 20232 min readIt's still hard to put myself firstOften when you have a chronic illness, the best thing you can do for yourself is to put yourself first. My upbringing, like many others,...
Kary PearsonDec 10, 20232 min readA Very Slow ChristmasThis is my third Christmas with M.E., and I think I'm getting better at pacing myself festively. In other words, I'm letting go of the...
Kary PearsonNov 25, 20231 min read25th November 2023American Thanksgiving has passed, which means it is now officially Christmas. Now I can finally start watching all of my Christmas movies...
Kary PearsonNov 8, 20231 min read"At least it's not cancer"People have implied that I should be grateful that I have Myalgic Encephalomyelitis instead of cancer. I want to talk about this, because...
Kary PearsonOct 27, 20232 min readHalloweenHalloween is one of my favourite holidays. It's a chance for people to let their imaginations fly and to play make believe. There's also...
Kary PearsonOct 1, 20232 min readHow is it October?The good news is that Collingwood won the Premiership yesterday. Daniel and I watched the Grand Final yesterday, and it was a nail-biter....
Kary PearsonSep 17, 20231 min readBummerToday Daniel and I should be headed to Adelaide so he can see a specialist. Instead, I'm in a crash and not well enough to travel. We...
Kary PearsonJul 27, 20231 min readAnother DiagnosisWhile Daniel recently acquired a whole collection of diagnoses in a single day, I gained one new diagnosis. Postural Orthostatic...
Kary PearsonJul 13, 20232 min readDisability PrideBecoming disabled wasn't something that I accomplished, so it's not something I feel that I take pride in. So why celebrate or even...
Kary PearsonJul 9, 20231 min readJuly 2023It's a cold and wet winter here in South Australia, and I haven't been able to get my fleeting thoughts in order. I'm just running on...
Kary PearsonJun 13, 20231 min readDefining MyselfHow do we define ourselves? For most people, it's by their job or hobbies; people define themselves by what they do. I used to be an HRIS...
Kary PearsonJun 7, 20231 min readQuietI haven't posted lately because things have been quiet here. Most days are the same, I wake up to feed the cats, go back to sleep, wake...
Kary PearsonMay 22, 20232 min readConstantly Shrinking WorldToday I saw this comic by Kornelia Paulsen, and I'll be damned if it doesn't nail how I feel. My world is shrinking, and my goals are...
Kary PearsonMay 20, 20231 min readRamblingI've been feeling below baseline (that sounds nicer than "like crap") for the past 2 weeks. Except for the day when I went to five...
Kary PearsonMay 14, 20231 min readActivities That Require EnergyRolling over in bed Getting out of bed Standing Walking Showering Changing clothes Preparing food Chewing Swallowing Digesting Sitting...
Kary PearsonMay 10, 20232 min readKary and DSPToday was my (hopefully) last step in the DSP (disability support pension) process. I had a 5 minute video chat with an independent...
Kary PearsonMay 5, 20231 min readRationing LifeThis is what pacing myself is like. I went out of the house for an event yesterday, and now I feel exhausted, sore, and like I'm full of...
Kary PearsonMay 4, 20231 min readWhat Are You Doing in that Wheelchair?I've mentioned this before, but it's worth repeating - in most cases, why a person is using a mobility aid isn't really your business. If...
