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M.E. Awareness Month

May is M.E. awareness month. Since you're reading this, you already know a bit about M.E. but there are still a few things you can do. •...

Disability Parking Permits

A lot of people seem passionate about disability parking places, so much so that they take it upon themselves to monitor people who park...

The Disability Tax

The disability tax is the additional cost of everyday life that only applies to disabled people.

Chronic Illness Doubled

I'm learning that dealing with my own chronic illness and disability is vastly different from watching someone I love deal with their own...

Which Comes First - NDIS Edition

A few weeks ago I got a call from my doctor's office because she wanted to see me. That happens when you have a chronic illness. It...

Brief update

We had a bit of an upset over the weekend when 2 of our foster cats got outside. Pippa came home after an hour or so, but Fergus was...

Rest

Here's something I wish I knew earlier in life- it is ok to rest. Everyone needs rest. I'm someone who now needs constant rest, but once...

My Current Crash

Today I recognised that yet again, as I'm in a PEM crash I'm still telling myself that I'm OK. I've written about this previously, and...

Always Talking About Disability

There's a reason that people with disabilities seem to always talk about disability. It's because we never get to stop thinking about it...

When Your Spouse Becomes Your Carer

Daniel and I have always had a relationship that felt equal. He doesn't mind the chores and responsibilities that I don't like, and...

Lying to Myself

A person I follow online who has M.E. wrote about documenting her difficult days so she can prove to her future self how bad she actually...

Let's Visit Some Other Disabled Bloggers!

I'm so glad that you're reading my blog. My hope is that you're learning about M.E., chronic illness and disability in general, or are...

What Is PEM?

PEM stands for Post Exertional Malaise, and is the tell-tale sign of Myalgic Encephalomyelitis. PEM is the crash that people with M.E....

Finally, A Good Experience

I had a good medical appointment yesterday. That seems like it shouldn't be noteworthy, but it is. I saw a physiotherapist for my...

Embarrassed

I'm still dealing with my own internalised ableism. A friend invited me to an event, and while I wasn't feeling well enough to go, I...

More Things That Help Me

Here are some more things that help me as someone with Myalgic Encephalomyelitis. My Webster pack of daily medications is a big help. I...

Mourning My Old Self

I've heard from a lot of people with chronic illnesses that they mourn their old selves, and I do too. Mourning a loss is totally normal....

My Reasons for This Blog

There are a few reasons I started this blog. It's partially a way to let family and friends know how I'm doing. It's also easier for me...

Tips for Preparing for Medical Appointments

Not to brag, but I'm a bit of an expert at going to medical appointments. Whether you only go for annual check ups or if you're part of...

How Long My M.E. Diagnosis Took

A friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....

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