Kary PearsonJun 13, 20231 min readDefining MyselfHow do we define ourselves? For most people, it's by their job or hobbies; people define themselves by what they do. I used to be an HRIS...
Kary PearsonMay 14, 20231 min readActivities That Require EnergyRolling over in bed Getting out of bed Standing Walking Showering Changing clothes Preparing food Chewing Swallowing Digesting Sitting...
Kary PearsonApr 19, 20231 min readBrief updateWe had a bit of an upset over the weekend when 2 of our foster cats got outside. Pippa came home after an hour or so, but Fergus was...
Kary PearsonApr 12, 20231 min readMy Current CrashToday I recognised that yet again, as I'm in a PEM crash I'm still telling myself that I'm OK. I've written about this previously, and...
Kary PearsonApr 10, 20232 min readAlways Talking About DisabilityThere's a reason that people with disabilities seem to always talk about disability. It's because we never get to stop thinking about it...
Kary PearsonApr 7, 20231 min readWhen Your Spouse Becomes Your CarerDaniel and I have always had a relationship that felt equal. He doesn't mind the chores and responsibilities that I don't like, and...
Kary PearsonApr 5, 20231 min readLying to MyselfA person I follow online who has M.E. wrote about documenting her difficult days so she can prove to her future self how bad she actually...
Kary PearsonApr 3, 20232 min readLet's Visit Some Other Disabled Bloggers!I'm so glad that you're reading my blog. My hope is that you're learning about M.E., chronic illness and disability in general, or are...
Kary PearsonMar 31, 20232 min readWhat Is PEM?PEM stands for Post Exertional Malaise, and is the tell-tale sign of Myalgic Encephalomyelitis. PEM is the crash that people with M.E....
Kary PearsonMar 29, 20231 min readFinally, A Good ExperienceI had a good medical appointment yesterday. That seems like it shouldn't be noteworthy, but it is. I saw a physiotherapist for my...
Kary PearsonMar 27, 20232 min readEmbarrassedI'm still dealing with my own internalised ableism. A friend invited me to an event, and while I wasn't feeling well enough to go, I...
Kary PearsonMar 24, 20232 min readMore Things That Help MeHere are some more things that help me as someone with Myalgic Encephalomyelitis. My Webster pack of daily medications is a big help. I...
Kary PearsonMar 22, 20232 min readMourning My Old SelfI've heard from a lot of people with chronic illnesses that they mourn their old selves, and I do too. Mourning a loss is totally normal....
Kary PearsonMar 20, 20231 min readMy Reasons for This BlogThere are a few reasons I started this blog. It's partially a way to let family and friends know how I'm doing. It's also easier for me...
Kary PearsonMar 17, 20233 min readTips for Preparing for Medical AppointmentsNot to brag, but I'm a bit of an expert at going to medical appointments. Whether you only go for annual check ups or if you're part of...
Kary PearsonMar 16, 20233 min readHow Long My M.E. Diagnosis TookA friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....
Kary PearsonMar 14, 20232 min readFearFear is a very real and constant part of my M.E. experience. I fear that I'll never get any better than my current condition, even as I...
Kary PearsonMar 14, 20232 min readM.E. Advocacy, What You Can DoIf I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...
Kary PearsonMar 13, 20232 min readBrain fogBrain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....
Kary PearsonMar 13, 20231 min readAny Questions?I can't think of what to write today, so I'd like to ask if you have any questions for me about M.E. or my experience with it. Want to...
