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Rambling

  • Writer: Kary Pearson
    Kary Pearson
  • May 20, 2023
  • 1 min read

I've been feeling below baseline (that sounds nicer than "like crap") for the past 2 weeks. Except for the day when I went to five different places (aka a M.E. marathon), but the following day I felt terrible. I think that was because one of the places I went to was the doctor's office for my 5th COVID shot. I felt fine after the first 4, but this one wiped me out.


I've had M.E. for 3 years now but some things still astonish me. Like how going out can exhaust me even when I'm in a wheelchair instead of walking. Or how moderately loud sounds pierce right through me. And how simply eating a meal raises my heart rate to 100.


I don't want to admit it to myself, but it's looking like I'll never get to go on a vacation/holiday again. I had my heart set on a nice lazy cruise, but I'm beginning to see that I won't be able to do any of the activities even if I'm seated the whole time. I don't even know if I could get out of my room for meals. It makes me feel like my world is shrinking.


Anyway, that's what I've been up to - not much at all beside surviving.

 
 
 

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