Kary PearsonMay 14, 20231 min readActivities That Require EnergyRolling over in bed Getting out of bed Standing Walking Showering Changing clothes Preparing food Chewing Swallowing Digesting Sitting...
Kary PearsonMay 5, 20231 min readRationing LifeThis is what pacing myself is like. I went out of the house for an event yesterday, and now I feel exhausted, sore, and like I'm full of...
Kary PearsonApr 10, 20232 min readAlways Talking About DisabilityThere's a reason that people with disabilities seem to always talk about disability. It's because we never get to stop thinking about it...
Kary PearsonApr 7, 20231 min readWhen Your Spouse Becomes Your CarerDaniel and I have always had a relationship that felt equal. He doesn't mind the chores and responsibilities that I don't like, and...
Kary PearsonMar 31, 20232 min readWhat Is PEM?PEM stands for Post Exertional Malaise, and is the tell-tale sign of Myalgic Encephalomyelitis. PEM is the crash that people with M.E....
Kary PearsonMar 24, 20232 min readMore Things That Help MeHere are some more things that help me as someone with Myalgic Encephalomyelitis. My Webster pack of daily medications is a big help. I...
Kary PearsonMar 22, 20232 min readMourning My Old SelfI've heard from a lot of people with chronic illnesses that they mourn their old selves, and I do too. Mourning a loss is totally normal....
Kary PearsonMar 17, 20233 min readTips for Preparing for Medical AppointmentsNot to brag, but I'm a bit of an expert at going to medical appointments. Whether you only go for annual check ups or if you're part of...
Kary PearsonMar 16, 20233 min readHow Long My M.E. Diagnosis TookA friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....
Kary PearsonMar 14, 20232 min readFearFear is a very real and constant part of my M.E. experience. I fear that I'll never get any better than my current condition, even as I...
Kary PearsonMar 14, 20232 min readM.E. Advocacy, What You Can DoIf I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...
Kary PearsonMar 13, 20232 min readBrain fogBrain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....
Kary PearsonMar 11, 20233 min readSpoons and PacingIf you have a chronic illness or know someone with one, you've probably heard of the spoon theory. The term was coined by Christine...
Kary PearsonMar 10, 20231 min readWhat's In A NameM.E. affects the brain and muscles as well as the digestive, immune, and cardiac systems. It's a complex illness, so why was it...
Kary PearsonMar 9, 20232 min readHow Bad Is It?M.E. gets categorised as mild, moderate, severe, and very severe. I'm mostly moderate, but closer to mild than severe. That's only...
Kary PearsonMar 5, 20232 min readSelf CareSelf care is big business, from fancy smelly candles to retreats that cost thousands of dollars. The self care options seem endless for...
Kary PearsonMar 3, 20231 min read3rd of March 2023It's not quite noon and I already overdid it. I woke up feeling like a human being. Daniel kindly brought me breakfast in bed. I checked...
Kary PearsonMar 2, 20232 min readWhat Do You Do All Day?There is one question that fills me with dread because I'm usually unsure how to answer it, "What do you do all day?" That question comes...
Kary PearsonMar 1, 20232 min readCrashPeople with M.E. talk a lot about crashes, which are exacerbations of symptoms. A crash is very similar to a flair-up, but it tends to be...
Kary PearsonFeb 28, 20232 min readToxic PositivityI usually consider myself an optimistic realistic, I accept the things I cannot change and look on the bright side. But optimism isn't...
