
M.E. Awareness Month
May is M.E. awareness month. Since you're reading this, you already know a bit about M.E. but there are still a few things you can do. •...

When Your Spouse Becomes Your Carer
Daniel and I have always had a relationship that felt equal. He doesn't mind the chores and responsibilities that I don't like, and...

Lying to Myself
A person I follow online who has M.E. wrote about documenting her difficult days so she can prove to her future self how bad she actually...

What Is PEM?
PEM stands for Post Exertional Malaise, and is the tell-tale sign of Myalgic Encephalomyelitis. PEM is the crash that people with M.E....

Mourning My Old Self
I've heard from a lot of people with chronic illnesses that they mourn their old selves, and I do too. Mourning a loss is totally normal....

My Reasons for This Blog
There are a few reasons I started this blog. It's partially a way to let family and friends know how I'm doing. It's also easier for me...

How Long My M.E. Diagnosis Took
A friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....

Is M.E. Contageous?
The short answer is that Myalgic Encephalomyelitis is not contageous. However, it is usually caused by viruses which are contageous....

M.E. Advocacy, What You Can Do
If I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...

Brain fog
Brain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....

Any Questions?
I can't think of what to write today, so I'd like to ask if you have any questions for me about M.E. or my experience with it. Want to...

Spoons and Pacing
If you have a chronic illness or know someone with one, you've probably heard of the spoon theory. The term was coined by Christine...

What's In A Name
M.E. affects the brain and muscles as well as the digestive, immune, and cardiac systems. It's a complex illness, so why was it...

How Bad Is It?
M.E. gets categorised as mild, moderate, severe, and very severe. I'm mostly moderate, but closer to mild than severe. That's only...

Self Care
Self care is big business, from fancy smelly candles to retreats that cost thousands of dollars. The self care options seem endless for...

3rd of March 2023
It's not quite noon and I already overdid it. I woke up feeling like a human being. Daniel kindly brought me breakfast in bed. I checked...

What Do You Do All Day?
There is one question that fills me with dread because I'm usually unsure how to answer it, "What do you do all day?" That question comes...

Crash
People with M.E. talk a lot about crashes, which are exacerbations of symptoms. A crash is very similar to a flair-up, but it tends to be...

Mobility Aids - Farther, Faster
Many people with chronic illnesses and disabilities use mobility aids such as walking sticks, crutches, rollators, or wheelchairs. A lot...


















