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Disability Pride

Becoming disabled wasn't something that I accomplished, so it's not something I feel that I take pride in. So why celebrate or even...

Disability Parking Permits

A lot of people seem passionate about disability parking places, so much so that they take it upon themselves to monitor people who park...

The Disability Tax

The disability tax is the additional cost of everyday life that only applies to disabled people.

Always Talking About Disability

There's a reason that people with disabilities seem to always talk about disability. It's because we never get to stop thinking about it...

When Your Spouse Becomes Your Carer

Daniel and I have always had a relationship that felt equal. He doesn't mind the chores and responsibilities that I don't like, and...

Lying to Myself

A person I follow online who has M.E. wrote about documenting her difficult days so she can prove to her future self how bad she actually...

Let's Visit Some Other Disabled Bloggers!

I'm so glad that you're reading my blog. My hope is that you're learning about M.E., chronic illness and disability in general, or are...

Embarrassed

I'm still dealing with my own internalised ableism. A friend invited me to an event, and while I wasn't feeling well enough to go, I...

More Things That Help Me

Here are some more things that help me as someone with Myalgic Encephalomyelitis. My Webster pack of daily medications is a big help. I...

Mourning My Old Self

I've heard from a lot of people with chronic illnesses that they mourn their old selves, and I do too. Mourning a loss is totally normal....

How Long My M.E. Diagnosis Took

A friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....

Fear

Fear is a very real and constant part of my M.E. experience. I fear that I'll never get any better than my current condition, even as I...

M.E. Advocacy, What You Can Do

If I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...

Brain fog

Brain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....

What's In A Name

M.E. affects the brain and muscles as well as the digestive, immune, and cardiac systems. It's a complex illness, so why was it...

How Bad Is It?

M.E. gets categorised as mild, moderate, severe, and very severe. I'm mostly moderate, but closer to mild than severe. That's only...

My Ableism

It took me over a year to identify as disabled. I kept telling myself that I wasn't doing that badly, that just because I couldn't do a...

Self Care

Self care is big business, from fancy smelly candles to retreats that cost thousands of dollars. The self care options seem endless for...

Preparing for Disability

I once read that the only way to avoid becoming disabled is to die young, and that's still no guarantee. Most people, especially healthy...

3rd of March 2023

It's not quite noon and I already overdid it. I woke up feeling like a human being. Daniel kindly brought me breakfast in bed. I checked...

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