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Activities That Require Energy

Rolling over in bed Getting out of bed Standing Walking Showering Changing clothes Preparing food Chewing Swallowing Digesting Sitting...

M.E. Awareness Month

May is M.E. awareness month. Since you're reading this, you already know a bit about M.E. but there are still a few things you can do. •...

Brief update

We had a bit of an upset over the weekend when 2 of our foster cats got outside. Pippa came home after an hour or so, but Fergus was...

Lying to Myself

A person I follow online who has M.E. wrote about documenting her difficult days so she can prove to her future self how bad she actually...

Finally, A Good Experience

I had a good medical appointment yesterday. That seems like it shouldn't be noteworthy, but it is. I saw a physiotherapist for my...

My Reasons for This Blog

There are a few reasons I started this blog. It's partially a way to let family and friends know how I'm doing. It's also easier for me...

How Long My M.E. Diagnosis Took

A friend asked me how long I waited to see a doctor once I knew something was wrong. I actually saw a doctor immediately. Since my M.E....

Is M.E. Contageous?

The short answer is that Myalgic Encephalomyelitis is not contageous. However, it is usually caused by viruses which are contageous....

M.E. Advocacy, What You Can Do

If I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...

Brain fog

Brain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....

Any Questions?

I can't think of what to write today, so I'd like to ask if you have any questions for me about M.E. or my experience with it. Want to...

Spoons and Pacing

If you have a chronic illness or know someone with one, you've probably heard of the spoon theory. The term was coined by Christine...

What's In A Name

M.E. affects the brain and muscles as well as the digestive, immune, and cardiac systems. It's a complex illness, so why was it...

How Bad Is It?

M.E. gets categorised as mild, moderate, severe, and very severe. I'm mostly moderate, but closer to mild than severe. That's only...

Self Care

Self care is big business, from fancy smelly candles to retreats that cost thousands of dollars. The self care options seem endless for...

3rd of March 2023

It's not quite noon and I already overdid it. I woke up feeling like a human being. Daniel kindly brought me breakfast in bed. I checked...

What Do You Do All Day?

There is one question that fills me with dread because I'm usually unsure how to answer it, "What do you do all day?" That question comes...

Crash

People with M.E. talk a lot about crashes, which are exacerbations of symptoms. A crash is very similar to a flair-up, but it tends to be...

Mobility Aids - Farther, Faster

Many people with chronic illnesses and disabilities use mobility aids such as walking sticks, crutches, rollators, or wheelchairs. A lot...

Invisible

M.E. feels like an invisible illness in more ways than one. Firstly and obviously, there are no physical markers, no scars, no splints,...

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