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Spoons and Pacing

If you have a chronic illness or know someone with one, you've probably heard of the spoon theory. The term was coined by Christine...

What's In A Name

M.E. affects the brain and muscles as well as the digestive, immune, and cardiac systems. It's a complex illness, so why was it...

How Bad Is It?

M.E. gets categorised as mild, moderate, severe, and very severe. I'm mostly moderate, but closer to mild than severe. That's only...

My Ableism

It took me over a year to identify as disabled. I kept telling myself that I wasn't doing that badly, that just because I couldn't do a...

Self Care

Self care is big business, from fancy smelly candles to retreats that cost thousands of dollars. The self care options seem endless for...

Preparing for Disability

I once read that the only way to avoid becoming disabled is to die young, and that's still no guarantee. Most people, especially healthy...

3rd of March 2023

It's not quite noon and I already overdid it. I woke up feeling like a human being. Daniel kindly brought me breakfast in bed. I checked...

Accessibility

I'd like to ask you a favour the next time you go out - count the number of steps you have to go up or down. Notice if ramps or elevators...

What Do You Do All Day?

There is one question that fills me with dread because I'm usually unsure how to answer it, "What do you do all day?" That question comes...

Crash

People with M.E. talk a lot about crashes, which are exacerbations of symptoms. A crash is very similar to a flair-up, but it tends to be...

Toxic Positivity

I usually consider myself an optimistic realistic, I accept the things I cannot change and look on the bright side. But optimism isn't...

Mobility Aids - Farther, Faster

Many people with chronic illnesses and disabilities use mobility aids such as walking sticks, crutches, rollators, or wheelchairs. A lot...

Invisible

M.E. feels like an invisible illness in more ways than one. Firstly and obviously, there are no physical markers, no scars, no splints,...

What does M.E. feel like?

For me, M.E. feels like having jet-lag, the flu, a concussion, and a migraine all at once. Some of my symptoms are severe tiredness after...

What is M.E.?

Myalgic encephalomyelitis is also called Chronic Fatigue Syndrome. Fatigue is certainly a big part of it, but it manifests in ways that...

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