Kary PearsonMar 15, 20231 min readIs M.E. Contageous?The short answer is that Myalgic Encephalomyelitis is not contageous. However, it is usually caused by viruses which are contageous....
Kary PearsonMar 14, 20232 min readFearFear is a very real and constant part of my M.E. experience. I fear that I'll never get any better than my current condition, even as I...
Kary PearsonMar 14, 20232 min readM.E. Advocacy, What You Can DoIf I can ask one thing of you, it's to become an advocate. People with M.E. do their best to advocate for themselves, but it can be...
Kary PearsonMar 13, 20232 min readBrain fogBrain fog from M.E. can be difficult to describe because it's so many different things. Still, I'll try to explain how I experience it....
Kary PearsonMar 13, 20231 min readAny Questions?I can't think of what to write today, so I'd like to ask if you have any questions for me about M.E. or my experience with it. Want to...
Kary PearsonMar 11, 20233 min readSpoons and PacingIf you have a chronic illness or know someone with one, you've probably heard of the spoon theory. The term was coined by Christine...
Kary PearsonMar 10, 20231 min readWhat's In A NameM.E. affects the brain and muscles as well as the digestive, immune, and cardiac systems. It's a complex illness, so why was it...
Kary PearsonMar 9, 20232 min readHow Bad Is It?M.E. gets categorised as mild, moderate, severe, and very severe. I'm mostly moderate, but closer to mild than severe. That's only...
Kary PearsonMar 6, 20233 min readMy AbleismIt took me over a year to identify as disabled. I kept telling myself that I wasn't doing that badly, that just because I couldn't do a...
Kary PearsonMar 5, 20232 min readSelf CareSelf care is big business, from fancy smelly candles to retreats that cost thousands of dollars. The self care options seem endless for...
Kary PearsonMar 4, 20232 min readPreparing for DisabilityI once read that the only way to avoid becoming disabled is to die young, and that's still no guarantee. Most people, especially healthy...
Kary PearsonMar 3, 20231 min read3rd of March 2023It's not quite noon and I already overdid it. I woke up feeling like a human being. Daniel kindly brought me breakfast in bed. I checked...
Kary PearsonMar 3, 20232 min readAccessibilityI'd like to ask you a favour the next time you go out - count the number of steps you have to go up or down. Notice if ramps or elevators...
Kary PearsonMar 2, 20232 min readWhat Do You Do All Day?There is one question that fills me with dread because I'm usually unsure how to answer it, "What do you do all day?" That question comes...
Kary PearsonMar 1, 20232 min readCrashPeople with M.E. talk a lot about crashes, which are exacerbations of symptoms. A crash is very similar to a flair-up, but it tends to be...
Kary PearsonFeb 28, 20232 min readToxic PositivityI usually consider myself an optimistic realistic, I accept the things I cannot change and look on the bright side. But optimism isn't...
Kary PearsonFeb 27, 20232 min readMobility Aids - Farther, FasterMany people with chronic illnesses and disabilities use mobility aids such as walking sticks, crutches, rollators, or wheelchairs. A lot...
Kary PearsonFeb 26, 20232 min readInvisibleM.E. feels like an invisible illness in more ways than one. Firstly and obviously, there are no physical markers, no scars, no splints,...
Kary PearsonFeb 25, 20232 min readWhat does M.E. feel like?For me, M.E. feels like having jet-lag, the flu, a concussion, and a migraine all at once. Some of my symptoms are severe tiredness after...
Kary PearsonFeb 24, 20232 min readItems that help meThese are some of the things I use to conserve energy. On days when I can't manage a shower but can brush my hair, I depend on dry...
