<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[M.E. & Myself]]></title><description><![CDATA[M.E. & Myself]]></description><link>https://karypearson.wixsite.com/mysite/blog</link><generator>RSS for Node</generator><lastBuildDate>Sat, 06 Jun 2026 18:58:02 GMT</lastBuildDate><atom:link href="https://karypearson.wixsite.com/mysite/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[My Wheels]]></title><description><![CDATA[I missed International Wheelchair Day a few days ago, but I still want to talk about it. There's a common misconception that resorting to...]]></description><link>https://karypearson.wixsite.com/mysite/post/my-wheels</link><guid isPermaLink="false">65e40ec76c72a46ce9b30b92</guid><pubDate>Sun, 03 Mar 2024 06:08:52 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[A Review]]></title><description><![CDATA[Trent Reznor best described my life - every day is exactly the same. I wake up, make my way to the living room, and at night I go back to...]]></description><link>https://karypearson.wixsite.com/mysite/post/a-review</link><guid isPermaLink="false">6590daf743f1159826b1319f</guid><pubDate>Sun, 31 Dec 2023 03:49:35 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[It's still hard to put myself first]]></title><description><![CDATA[Often when you have a chronic illness, the best thing you can do for yourself is to put yourself first. My upbringing, like many others,...]]></description><link>https://karypearson.wixsite.com/mysite/post/it-s-still-hard-to-put-myself-first</link><guid isPermaLink="false">657e7dffc042684f86be71b9</guid><pubDate>Sun, 17 Dec 2023 05:20:03 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[A Very Slow Christmas]]></title><description><![CDATA[This is my third Christmas with M.E., and I think I'm getting better at pacing myself festively. In other words, I'm letting go of the...]]></description><link>https://karypearson.wixsite.com/mysite/post/a-very-slow-christmas</link><guid isPermaLink="false">65755104ae41de98787db5da</guid><pubDate>Sun, 10 Dec 2023 06:31:22 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/c9180f_384301decdfd4980ae7bf33ba22ae2f2~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[25th November 2023]]></title><description><![CDATA[American Thanksgiving has passed, which means it is now officially Christmas. Now I can finally start watching all of my Christmas movies...]]></description><link>https://karypearson.wixsite.com/mysite/post/25th-november-2023</link><guid isPermaLink="false">656170babb0b4d937e94ecfd</guid><pubDate>Sat, 25 Nov 2023 04:16:43 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA["At least it's not cancer"]]></title><description><![CDATA[People have implied that I should be grateful that I have Myalgic Encephalomyelitis instead of cancer. I want to talk about this, because...]]></description><link>https://karypearson.wixsite.com/mysite/post/at-least-it-s-not-cancer</link><guid isPermaLink="false">654b212316b1b03483066366</guid><pubDate>Wed, 08 Nov 2023 05:57:05 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/c9180f_4ff8f11c6dfc4609a0d1f80c1ab2627f~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Halloween]]></title><description><![CDATA[Halloween is one of my favourite holidays. It's a chance for people to let their imaginations fly and to play make believe. There's also...]]></description><link>https://karypearson.wixsite.com/mysite/post/halloween</link><guid isPermaLink="false">653b5299ee6ccb998812decd</guid><pubDate>Fri, 27 Oct 2023 06:30:36 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[How is it October?]]></title><description><![CDATA[The good news is that Collingwood won the Premiership yesterday. Daniel and I watched the Grand Final yesterday, and it was a nail-biter....]]></description><link>https://karypearson.wixsite.com/mysite/post/how-is-it-october</link><guid isPermaLink="false">6518ff2ab32cf4993345342b</guid><pubDate>Sun, 01 Oct 2023 05:36:48 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Bummer]]></title><description><![CDATA[Today Daniel and I should be headed to Adelaide so he can see a specialist. Instead, I'm in a crash and not well enough to travel. We...]]></description><link>https://karypearson.wixsite.com/mysite/post/bummer</link><guid isPermaLink="false">65068897ed415ed21d459c0d</guid><pubDate>Sun, 17 Sep 2023 05:16:13 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Another Diagnosis]]></title><description><![CDATA[While Daniel recently acquired a whole collection of diagnoses in a single day, I gained one new diagnosis. Postural Orthostatic...]]></description><link>https://karypearson.wixsite.com/mysite/post/another-diagnosis</link><guid isPermaLink="false">64c21a0425f6a27ca03699e3</guid><pubDate>Thu, 27 Jul 2023 07:32:20 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Disability Pride]]></title><description><![CDATA[Becoming disabled wasn't something that I accomplished, so it's not something I feel that I take pride in. So why celebrate or even...]]></description><link>https://karypearson.wixsite.com/mysite/post/disability-pride</link><guid isPermaLink="false">64afc463bf80b0bfee28580d</guid><pubDate>Thu, 13 Jul 2023 10:04:34 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[July 2023]]></title><description><![CDATA[It's a cold and wet winter here in South Australia, and I haven't been able to get my fleeting thoughts in order. I'm just running on...]]></description><link>https://karypearson.wixsite.com/mysite/post/july-2023</link><guid isPermaLink="false">64aa0031599e53e915d78cb9</guid><pubDate>Sun, 09 Jul 2023 00:46:00 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Defining Myself]]></title><description><![CDATA[How do we define ourselves? For most people, it's by their job or hobbies; people define themselves by what they do. I used to be an HRIS...]]></description><link>https://karypearson.wixsite.com/mysite/post/defining-myself</link><guid isPermaLink="false">6487d2d935b8017d1961c246</guid><pubDate>Tue, 13 Jun 2023 04:40:12 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Quiet]]></title><description><![CDATA[I haven't posted lately because things have been quiet here. Most days are the same, I wake up to feed the cats, go back to sleep, wake...]]></description><link>https://karypearson.wixsite.com/mysite/post/quiet</link><guid isPermaLink="false">64801adab2e58b283d1cc376</guid><pubDate>Wed, 07 Jun 2023 06:02:40 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Constantly Shrinking World]]></title><description><![CDATA[Today I saw this comic by Kornelia Paulsen, and I'll be damned if it doesn't nail how I feel. My world is shrinking, and my goals are...]]></description><link>https://karypearson.wixsite.com/mysite/post/constantly-shrinking-world</link><guid isPermaLink="false">646ae1a93353dca24186a38a</guid><pubDate>Mon, 22 May 2023 04:12:51 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/c9180f_7141bb6cbfd14f5dbc8ec4ece411b84a~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Rambling]]></title><description><![CDATA[I've been feeling below baseline (that sounds nicer than "like crap") for the past 2 weeks. Except for the day when I went to five...]]></description><link>https://karypearson.wixsite.com/mysite/post/rambling</link><guid isPermaLink="false">6468834532a5115e9bd1e093</guid><pubDate>Sat, 20 May 2023 09:13:23 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Activities That Require Energy]]></title><description><![CDATA[Rolling over in bed Getting out of bed Standing Walking Showering Changing clothes Preparing food Chewing Swallowing Digesting Sitting...]]></description><link>https://karypearson.wixsite.com/mysite/post/activities-that-require-energy</link><guid isPermaLink="false">645f4062489710b4f4f4527f</guid><pubDate>Sat, 13 May 2023 23:01:10 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Kary and DSP]]></title><description><![CDATA[Today was my (hopefully) last step in the DSP (disability support pension) process. I had a 5 minute video chat with an independent...]]></description><link>https://karypearson.wixsite.com/mysite/post/kary-and-dsp</link><guid isPermaLink="false">645b24608ed6e75107348962</guid><pubDate>Wed, 10 May 2023 05:24:49 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[Rationing Life]]></title><description><![CDATA[This is what pacing myself is like. I went out of the house for an event yesterday, and now I feel exhausted, sore, and like I'm full of...]]></description><link>https://karypearson.wixsite.com/mysite/post/rationing-life</link><guid isPermaLink="false">645304f7c3c75c7854a09df9</guid><pubDate>Thu, 04 May 2023 23:02:31 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/c9180f_de7308bc203e43f9ac4e5e3d349a10c4~mv2.jpg/v1/fit/w_960,h_601,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Kary Pearson</dc:creator></item><item><title><![CDATA[What Are You Doing in that Wheelchair?]]></title><description><![CDATA[I've mentioned this before, but it's worth repeating - in most cases, why a person is using a mobility aid isn't really your business. If...]]></description><link>https://karypearson.wixsite.com/mysite/post/what-are-you-doing-in-that-wheelchair</link><guid isPermaLink="false">64524b283a43193d07f9b313</guid><pubDate>Wed, 03 May 2023 23:01:01 GMT</pubDate><dc:creator>Kary Pearson</dc:creator></item></channel></rss>